Im pretty sure its not lukemia or anything like that. EDS is a really complex illness and all the symptoms are pretty much consistent with a lot of other people with it and I also have Chiari Malformation on top of it which can aggrivate EDS and vice versa. A lot of stuff Ive had going on in my life for most of my life but just not as bad as it is now but its just the way it can go. Its not progressive like MS but its degenerative and compared to some other people I know I am not as bad but then am worse than others. Ive basically been forced to change a lot of things in my life because of it getting worse but its just one of those things to me now but like I said its a really complex illness. Basically the part of my body that produces collagen for my body makes faulty weak fragile collagen and pretty much everything in your body contains collagen so when its producing faulty collagen that supplies your whole body it just wreaks havoc. It can ffect your skin, muscles, organs, teeth and gums, eyes, ears... like pretty much everything.
Best way I can explain it is imagine you have a piece of thick elastic or even a fan belt (since you are into cars lol ) so when you get a new fan belt or peice of elastic, its really strong and elastic, stretchy, strong, snaps back into place like youd expect but when its old and worn out it doesnt work right, it wont snap back so much and it puckers and warps out of place. You would never want to put an old fan belt in a car or an old stretched out peice of elastic in a piece of clothes. Imagine thats what you started out with though... Its not going to perform very well, it may last a little while longer but its really just not going to do the job at all. Imagine thats what your collagen starts out as. Your muscles arent as strong, prone to straining, wont hold joints in place properly, really stretchy fragile skin, stomach issues because the tissue in your esophageus is fragile and can tear easily, muscles at top of your stomach doesnt work right so you get acid reflux, nausea, problems with your eyes, issues with wound healing blah its so complicated and there is barely any help anywhere in the world for ppl with EDS, theres no treatment, physio can help but if you have a severely damaged muscle then it can take forever to heal and it might not ever fully heal. A lot of time once you start getting issues with a joint holding in place it just continues to get worse, operations might not work and can make it worse. Its just one big clusterfuck of an illness. But shit happens ................ etc lol
